Lucy Ward, age 9, is a true fighter. Diagnosed with PANDAS/PANS, Lyme disease, and Common Variable Immune Deficiency at age four, Lucy bravely faces numerous physical and neuropsychiatric symptoms —plus blood work, monthly shots, tons of daily medications, and infusions. At just nine years old, she is already a passionate and effective advocate (without even realizing it). She’s very knowledgeable about her conditions, proudly wears her PANDAS Awareness shirts everywhere she goes, and helps put together information for teachers at her school.
Lucy has filmed videos to help other kids be less afraid of having blood work, and she’s visited the state Capitol twice to talk with legislators about PANS/PANDAS and share her experience. Right now, she’s working on a PowerPoint presentation about living with PANS/PANDAS, which she hopes to use to help educate people about these little-known conditions.
‘Sometimes you have to do things you don’t want to — just do it and get it over with. Never give up your dreams!’
While Lucy’s conditions make life rough sometimes, she’s not about to give up on having fun and pursuing her dreams. Like a lot of kids her age, she loves to play soccer and do gymnastics, and adores playing outside with her friends and brothers. She dreams of visiting Paris someday and wants to be a professional gymnast—after competing in the Olympics.